Introduction The number of children with life-limiting conditions has risen in recent decades, partly due to medical advances enabling increased survival. It is unclear how the medical complexity of ...
Noonan syndrome (NS) is a mostly dominantly inherited disorder affecting 1:1000 to 1:2500 live births. The phenotype varies in severity and can involve multiple organ systems over a patient’s lifetime ...
1 Department of Paediatric Neurology, Sheffield Children's Hospital, NHS Foundation Trust, Sheffield, UK 2 Department of Paediatric Neuroradiology, Sheffield Children's Hospital, NHS Foundation Trust, ...
1 Department of Paediatric Endocrinology, University Hospital Southampton, Southampton, UK 2 Department of Endocrinology and Diabetes, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, ...
Correspondence to Dr Neil Patel, Department of Neonatology, Royal Hospital for Children, Glasgow G51 4TF, UK; neilpatel1{at}nhs.net FIC builds on the foundations of Family-Centred Care, a ...
Estimates for the UK suggest that alcohol consumption during pregnancy and prevalence of fetal alcohol spectrum disorder (FASD)—the most common neurodevelopmental condition—are high. Considering the ...
Methods A list of infants admitted to the NICU and sister SCBU over a 14 month period with a diagnosis of HIE was obtained retrospectively from BadgerNet. Infants at risk of but not diagnosed with HIE ...
Objective To qualitatively assess the discharge processes and postdischarge care in the community for infants discharged after congenital heart interventions in the first year of life. Design ...
Objective The objective is to explore the experiences of children and young people (CYP) with cancer, their parents, and healthcare professionals (HCPs) involved in their care of oral mucositis.
Objectives To develop and validate a new allergy-specific patient-reported experience measure (PREM) for children and their parents, and to collect feedback in an integrated care setting. Design Two ...
Aims 1)To evaluate parent perspectives on the standard of practice regarding the Newborn Infant Physical Examination (NIPE). 2) To evaluate what information is already given to parents regarding NIPE ...