Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.

Columnist Betty Vertin pays tribute to her 11-year-old daughter, Mary, who is wise beyond her years and always steps in to help.

Rather than giving up something he enjoys, columnist Shalom Lim has learned how to adapt to change in the way he accesses ...

In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a ...

Rayna Haque reflects on her brother Anjar's life with LGMD, including his passion for wrestling, and his legacy of love and ...

Increasing pain and weakness are making it more and more challenging for columnist Robin Stemple to move his body, especially ...

For DJ Kevin Kaelin, who lives with Duchenne muscular dystrophy, the power of music lets the crowd see beyond his physical ...

Guest writer Steve Way wants to share the things he wishes people had said to him following his diagnosis of muscular ...

I have been involved with the annual Parent Project Muscular Dystrophy (PPMD) conference since 2002. Back then, the conference was attended by fewer than 50 people, almost no one living with muscular ...

Columnist Shalom Lim discusses a new independent film in which all of the disabled characters were played by actors with ...

Last week, I traveled with my sons Max, Rowen, and Charlie to Colorado for their multidisciplinary neuromuscular clinic visit at a children’s hospital. My husband and I typically don’t both travel ...