The Speak Foundation launched the LGMD Centers of Excellence, a network of clinics dedicated to improving care for people ...

Wheelchairs tend to be equated with disability, but columnist Patrick Moeschen sees them as tools that increase function and ...

Upsher-Smith launched Kymbee support websites offering guidance on treatment, access, and care for DMD patients, caregivers, ...

An industry collaborative was formed with the goal of improving the design of clinical trials testing new treatments for FSHD ...

Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with ...

Histone deacetylase inhibitors are a treatment approach designed to work by blocking an enzyme that turns off gene activity. This may ultimately help by slowing muscle loss and disease progression.

Myotonic dystrophy type 1 (DM1) is a form of muscular dystrophy that is caused by a mutation in the dystrophia myotonica protein kinase, or DMPK gene, found on chromosome 19. The disease is inherited ...

Assistive technology refers to any computer-controlled product, gadget, device, application, or service that assists, maintains, or improves the abilities of individuals with motor disabilities. The ...

Muscular dystrophy refers to a group of genetic diseases that cause progressive muscle weakness and loss. There are more than 30 types of muscular dystrophy, all with different causes and symptoms.

“Take him home and give him a good life.” This was the main advice given to Jessica and Chris Curran by a genetic counselor after their son, Conner, was diagnosed with Duchenne muscular dystrophy (DMD ...

Going to school for the first time is an important moment in a child’s life. The educational journey for a child with Duchenne muscular dystrophy (DMD) can be exciting but also challenging. To smooth ...

For teenagers or young adults with Duchenne muscular dystrophy (DMD), learning life skills can help you gain more control over your life while managing this progressive condition. For parents, helping ...