Adith Thummalapalli navigates life with DMD by finding community through Parent Project Muscular Dystrophy's Adult Advisory ...

Managing my condition is a full-time job. Muscular dystrophy (MD) has woven its way into more than just my muscles. It takes a mental toll as time goes by. The hours tick away. The cells tick away. I ...

Foir National Family Caregivers Month, columnist Robin Stemple gives a shout out to all those who help him remain in his home ...

In a first-in-human clinical trial, a gene therapy was found to improve swallowing ability for people with oculopharyngeal ...

While making plans for his life after his 31st birthday, columnist Shalom Lim had his first advance care planning meeting.

A developer is investigating why its therapy for improving function in people with Becker muscular dystrophy failed to meet a key trial goal.

People living with neuromuscular diseases and their families should help shape new treatments from the very start, rather than weighing in only after key decisions are made, according to experts and ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit When I was 4, I was diagnosed with Duchenne muscular dystrophy, a neuromuscular muscle-wasting ...

It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...

I have been involved with the annual Parent Project Muscular Dystrophy (PPMD) conference since 2002. Back then, the conference was attended by fewer than 50 people, almost no one living with muscular ...

My regular readers know that I love to play music. I’ve been performing nearly my entire life. Music began for me when I was 5 years old. My dad taught my brother, Tim, and me to play guitar and banjo ...