Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Friday, my girlfriend, Amanda Yip, and I celebrated the ...

Mental health problems such as anxiety and depression are common for people with muscular dystrophy, affecting most individuals in the community, according to a new survey. The survey was carried out ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...

The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...

What is Amondys 45 for muscular dystrophy? Amondys 45 (casimersen) is an approved antisense oligonucleotide therapy for the treatment of Duchenne muscular dystrophy (DMD) in people with certain DMD ...

DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function after the change.

Exon skipping is a treatment approach for people whose Duchenne muscular dystrophy is due to certain mutations in its causative gene. Exon skipping works like a molecular patch, so that the DMD gene ...

Muscular dystrophy refers to a group of genetic diseases that cause progressive muscle weakness and loss. There are more than 30 types of muscular dystrophy, all with different causes and symptoms.

A Phase 3 clinical trial testing delpacibart etedesiran (del-desiran), an experimental treatment for myotonic dystrophy type 1 (DM1), failed to hit its main goal. The Phase 3 HARBOR trial (NCT06411288 ...

Recognizing the early signs of Duchenne muscular dystrophy (DMD) may help slow its progression and alleviate DMD symptoms. DMD is a genetic condition that causes progressive muscle weakness and muscle ...