September 2026 Thu 17 Sam Osborn Memorial Golf Tournament September 17 - September 18 Tiburon Golf Club & Banquet Facility 10302 SOUTH 168TH STREET, OMAHA, NE, United States Join us for the annual Sam ...

Seeing two sons with DMD lose the ability to walk isn't making the third son's disease progression any easier, says columnist Betty Vertin.

His daughter's graduation was a special day for columnist Robin Stemple and his family. But accessibility issues rained on ...

Bridgebio is funding the MDA with $100,000 to advance projects aimed at improving multidisciplinary care for people with LGMD ...

Duchenne Parent Project Spain is investing €247,000 in a project to create a new laboratory model to study heart health in ...

Epicrispr Biotechnologies is partnering with Forge Biologics to support the development of EPI-321, an one-time epigentic ...

As columnist Shalom Lim continues to process the loss of a dear friend, he explains why DMD advocacy work is his calling in ...

Columnist Betty Vertin shares a conversation with her daughter Lexi about finding out she was not a DMD gene carrier.

My dear friend Colin Rensch had a saying: “If you think you can, then of course you can.” I met Colin because I live with limb-girdle muscular dystrophy, and he lived with Duchenne muscular dystrophy.

Regulators in the European Union granted orphan drug designation to SGT-003, an experimental gene therapy for Duchenne ...

This article was provided by our partner, the Muscular Dystrophy Association. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and ...